Monday, December 7, 2009

Update on equipment and Ketogenic diet...

So very tired today but wanted to update everyone. We are still working on trying to get the gait trainer. The gait trainer Mrs Amy was working on fell through, but that is okay God has something better for us.
We tried Abigaile on a new juice day before yesterday and also gave her pasta, I'm thinking our organic foods that we are paying for are not as organic as they are saying. Abigaile can not tolerate even the organic sugar. She had five seizures night before last and they were spread out enough all night that none of us slept and we finally got her to sleep and she had a fluid release and woke up in a seizure. This never gets any easier. I hate seizures and feel they need to loose the children and adults on this earth and flee back to the very pitt of hell where they came from! We went to church yesterday and drove around a bit last night to look at Christmas lights. This year was the first year Abigaile has really been able to see the lights from her car seat.
We are on hold right now for the Ketogenic diet as Abigailes dairy came back positive and until we can make certain she can tolerate the dairy. I am assured by the Amish farmers in Pa. that they do not feed corn or grains to their cows. Very expensive to get, it is $12 per qt. and $22 to ship. It has to be shipped overnight because it is raw and to avoid spoilage. This would be the majority of her diet but her neurologist at LeBonheur believes this will stop the drop attack seizures. It is getting too difficult for me to carry her and to move her from upstairs to downstairs so we are praying about where God would send us next. We anxiously await His orders. If He got me to it, He will get me through it.
Going to be praying about some really big decisions to make in the near future. We are needing God to show us in a big way how He wants us to handle them.
I pray its somewhere warm:) Florida would be nice!

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